tag:blogger.com,1999:blog-8467184516054189174.post177591675979236524..comments2024-01-31T04:45:31.705-05:00Comments on Totus Tuus Family & Catholic Homeschool: Lyme's Meningitis ~ Our StoryAllisonhttp://www.blogger.com/profile/05423794317423373245noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-8467184516054189174.post-48530416123825896942013-04-15T09:47:15.819-04:002013-04-15T09:47:15.819-04:00Sharon, sorry to hear you were bit!
My daughter h...Sharon, sorry to hear you were bit!<br /><br />My daughter has not had any reoccurences, thank the Lord. I truly hope that you are symptom free after the IV!Allisonhttps://www.blogger.com/profile/05423794317423373245noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-9155645642524512992013-04-14T09:07:41.038-04:002013-04-14T09:07:41.038-04:00Thank you so much for sharing your story. I got bi...Thank you so much for sharing your story. I got bit at the end of February and after a month of being on oral Ceftin, I started to show symptoms again after a month and they put me on IV cefitroxone (sp?). I'm hopeful that this will help and that I don't move into the chronic stages of Lyme so I wanted to see if your daughter had reoccurring symptoms after IV treatment. I'm prayerful and hopeful that this will be cured, I just want to make sure that I am doing all the right things since I'm still fairly in the early stages. Thank you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-39552034025442034042013-02-16T14:56:56.761-05:002013-02-16T14:56:56.761-05:00Juliana's Mom, it is amazing to hear from you!...Juliana's Mom, it is amazing to hear from you! I wish I could hear that Juliana was cured, too. So sorry to hear that there are some residual issues but glad they are small.<br /><br />My mother did tell me about your meeting in the playroom. Still floors me how many kids had Lyme's Meningitis at the same time! She loved meeting you and thought you might be considering homeschooling? Please let me know if you have any questions that you think I might be able to answer.<br /><br />Thank you so much for writing. I am touched that your daughter keeps the rosary by her bed. God bless your family and take care!Allisonhttps://www.blogger.com/profile/05423794317423373245noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-30880102292251808482013-02-15T21:02:43.404-05:002013-02-15T21:02:43.404-05:00Allison,
I can't believe I saw this blog! My d...Allison,<br />I can't believe I saw this blog! My daughter Juliana was at AI Dupont with your daughter. We were in the child life center sitting at a table with your mother in law and your daughter, when your daughter said, "look she has what I have". Your mother in law said, "not everyone with a PICC line has Lymes Meningitis". Well your daughter was correct. Juliana too had Lymes Meningitis! Our stories were so similar amd I had a lovely conversation with your family about home schooling, our children, and just life in general. Your mother in law taught Juliana and I how to make a rosary out of beads, which still hangs on the headboard of Juliana's bed. I am so glad to hear your daughter is well now! Juliana is having a few small issues which I am attributing to the lymes and awaiting word from her Dr. on what he thinks. JULIANASMOMMY217https://www.blogger.com/profile/17911780652800715450noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-14120070273554414452012-10-22T20:55:42.697-04:002012-10-22T20:55:42.697-04:00Madison, I am soooo sorry to hear that this has ne...Madison, I am soooo sorry to hear that this has never resolved for your family! Prayers!<br /><br />We are over it here, thank the Lord. I wonder, did you read anonymous' post above? She wrote, " LLMD. Meanwhile, if you want to learn more about the controversy, check out the book "Cure Unknown" by Pamela Weintraub.<br />Also, you may want to consider requesting the western blot ..." And to check out a website called iliads.org.<br /><br />I pray you all find relief.Allisonhttps://www.blogger.com/profile/05423794317423373245noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-71558855845630500302012-10-20T18:47:30.809-04:002012-10-20T18:47:30.809-04:00Hi, I can't believe I am reading your story, m...Hi, I can't believe I am reading your story, my son had meningitis, then confirmed lyme meningitis at aidupont may 2012. just a short time before your daughter. I know exactly what you have gone through and how great Ai Dupont is. Here we are months later and Owen is still having symptoms along with his sister and myself. We are gaving the worst time getting help, as we are military and had to move from dover to Albuquerque new MexicoMadison raynoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-73532800809269544242012-09-18T17:41:44.219-04:002012-09-18T17:41:44.219-04:00Thank you! Your kindness is much appreciated!Thank you! Your kindness is much appreciated!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-46871393979256775032012-09-17T21:14:54.701-04:002012-09-17T21:14:54.701-04:00Dear Anonymous,
I appreciate the heads-up and the...Dear Anonymous,<br /><br />I appreciate the heads-up and the time you took to share it. Thank you!<br /><br />I will be on the look-out and I pray that in the future medicine can treat your fatigue, join pain and anything your children may also have...so sorry. May God use your suffering to bring great graces.<br /><br />God bless!Allisonhttps://www.blogger.com/profile/05423794317423373245noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-62942235617673312642012-09-17T01:06:14.294-04:002012-09-17T01:06:14.294-04:00I'm very glad to hear that they were able to c...I'm very glad to hear that they were able to correctly diagnose your daughter and treat her quickly. It sounds like she is doing well and seems to be experiencing the best possible outcome.<br />I am a Catholic mom of four young kids: two here, two in heaven that I lost in utero. I had several seemingly unrelated health issues in addition to my miscarriages including migraines starting in my twenties, joint pain especially knees and mind boogling fatigue. My Lyme wasn't caught for years and by the time it was, it was late stage and therefore harder to treat (impossible to cure it looks like) and I gave it to my kids. For some reason, many doctors say this is impossible but the Lyme bacteria is most closely related to syphilis which is known to be passed from mother to child and my daughter tested positive at such a point in her life that she would have had to have been infected with Lyme at 2 months or younger or she got it from me.<br />The is a lot of controversy about the treatment for Lyme Disease and especially the duration of the treatment. If you find your daughter develops any type of chronic, recurring and seemingly unrated symptoms within the next couple of years, consider seeing a LLMD. Meanwhile, if you want to learn more about the controversy, check out the book "Cure Unknown" by Pamela Weintraub.<br />Also, you may want to consider requesting the western blot for your sons (and/or you and your husband) because if your daughter and friend's son got cases that bad, any one of you may have a less serious case.<br />I hope I'm not scaring you. I am trying to give you information I would have wanted to know if I was in your shoes and also information that if you do notice something out of whack, you will be empowered by the information rather than scared as I know I was when I finally got correctly diagnosed.<br />Sometimes, the path back to health is straight and narrow--perhaps even the vast majority of the time....but if you find yourself feeling that any one of you is not quite 100%, then I pray and hope this post will be helpful. Also, you can check out www.ilads.org which is run by and for doctors who take the more aggressive treatment approach.<br />Thank you for allowing me to post. God bless you and your family!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-49875322839770548152012-07-21T21:25:58.288-04:002012-07-21T21:25:58.288-04:00Every day is getting a little more normal here. I ...Every day is getting a little more normal here. I saw my little girl run out and into the arms of the neighbor children who had made cards and posters for her. She missed playing with them so much and she quickly babbled about 100 details to them and kept telling them how happy she was to be herself again. <br /><br />Brought tears to my eyes.<br /><br />And it reminded to to get back her and thank you for your prayers. I can't thank you enough and God is so good! <br /><br />Your kindness is His love in action.Allisonhttps://www.blogger.com/profile/05423794317423373245noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-19801984288180081062012-07-16T09:34:19.621-04:002012-07-16T09:34:19.621-04:00Because I knew about this before going on holiday ...Because I knew about this before going on holiday to the mainland (where deer ticks are plentiful, especially on this last leg of our trip - and we've seen them on us!) I've been a bit paranoid . . .but I'm praying about it. And, I'm continuing to pray for your girls healing and recovery. I know how hard it is to watch your child go through medical procedures (and have them gurneyed away from you for surgery - Christian was 3 when he went for surgery so I know). You have my deepest understanding and love! <br />God continue to bless and keep you, and Mary guide you. Amen.Sarah Oldhamhttps://www.blogger.com/profile/00169484284618791110noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-38012374539420865652012-07-14T14:05:37.276-04:002012-07-14T14:05:37.276-04:00So sorry Alison that your little one had to endure...So sorry Alison that your little one had to endure this but also very relieved it wasn't worse and that that the medicine has helped. I love the photos, especially the one with the boys surrounding her. Will keep everyone in my prayers. Not only was it wonderful that you captured the "ordeal" in photos, but you also have done a public service. I never knew Lyme's could cause meningitis! Thank God for a good outcome and for good mothers (and grandmothers) like the ones your daughter has!<br />JoyceTLWhttps://www.blogger.com/profile/05699746979019393620noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-81209928341509623662012-07-13T14:26:27.829-04:002012-07-13T14:26:27.829-04:00OH, I'm so sorry you've had such a hard su...OH, I'm so sorry you've had such a hard summer so far!!! I'll be praying for a continued recovery. Lyme's disease is soooo hard. We have deer ticks all over the place, always praying for the angels to protect the kiddos from them! Hopefully the heat has taken them away for this year. <br /><br />so glad you shared and that she is on the mend.Jamie Johttps://www.blogger.com/profile/17678469484585027738noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-8402670715886658512012-07-12T16:54:18.900-04:002012-07-12T16:54:18.900-04:00How scary for all of you! I can't imagine...
...How scary for all of you! I can't imagine...<br /><br />Your story makes me want to check my kids every night, though I can't imagine being able to even see that tick! Their hair alone could hide hundreds!Barbarahttps://www.blogger.com/profile/00747308009364094199noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-91657676339132835262012-07-12T16:13:53.107-04:002012-07-12T16:13:53.107-04:00Wow... just wow! I am choked up reading this. Ma...Wow... just wow! I am choked up reading this. May God bless you all and heartfelt prayers for continued improvement and good health! +JMJ+Mom2Sevenhttps://www.blogger.com/profile/16556390705963609169noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-11477836944712431122012-07-12T13:14:38.523-04:002012-07-12T13:14:38.523-04:00Moved to tears, dear friend. I am so pained that ...Moved to tears, dear friend. I am so pained that I was on vacation the week this all happened and was clueless. Thanking God for your strength and your sharing and your beautiful girl. xoxo JosJosiehttps://www.blogger.com/profile/11620517716679307182noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-22597245668223991372012-07-12T06:05:38.981-04:002012-07-12T06:05:38.981-04:00Oh my!! How scary. I can't even imagine. Tha...Oh my!! How scary. I can't even imagine. Thankfully she is on the mend.<br /><br />I do think the mild winter has made for a worse tick season. We live in a wooded area just a few minutes outside of Atlanta, and we have to constantly check out dog. It is very scary.<br /><br />I hope she continues to heal well!Stephanie @ The Brunette Foodiehttp://www.thebrunettefoodie.comnoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-81330990715196518362012-07-11T23:58:05.864-04:002012-07-11T23:58:05.864-04:00So sorry to hear your family has been through such...So sorry to hear your family has been through such trials, but so thankful you are home and your daughter is doing better! Deo Gratias, and I will keep you in my prayers!Kimberleehttps://www.blogger.com/profile/14980588863109281657noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-61450064138431525182012-07-11T22:50:47.789-04:002012-07-11T22:50:47.789-04:00Thank You for writing this post. We live in Georgi...Thank You for writing this post. We live in Georgia and have seen more ticks this year than ever. Just a few days ago I pulled two off my two year old. I'm so glad your daughter is on her way to recovery, Deo Gratias. I just have to mention that picture of your boys visiting your daughter in the hospital is beautiful! I grew up with four older brothers(no sisters).Kathynoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-31323959243414428122012-07-11T22:33:01.294-04:002012-07-11T22:33:01.294-04:00Allison, I worry so much about Tics here in rural ...Allison, I worry so much about Tics here in rural Ohio! ...we removed one from Michael years ago, off he back of his neck, and while he didn't show symptoms of anything I always was SO nervous anticipating the possibility. God was really with your daughter every step of the way! Thank you for sharing your story and her life with us as it is so full of trust and encouragement. Many blessings! DeniseHome School Mom: Denisehttps://www.blogger.com/profile/16291593100502544244noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-61072703983720943412012-07-11T21:28:30.612-04:002012-07-11T21:28:30.612-04:00I feel like I have been at your side through this ...I feel like I have been at your side through this ordeal and I am fighting back the tears as I read this. Thank the Lord your baby is home safe and sound. May she feel better soon!!elena maria vidalhttps://www.blogger.com/profile/17129629173535139807noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-44269254008430752112012-07-11T20:23:23.121-04:002012-07-11T20:23:23.121-04:00Allison,
I am so glad that your daughter is doing...Allison,<br /><br />I am so glad that your daughter is doing well..and so sorry for her that she had to endure such a difficult time!<br /><br />Thank you for highlighting this most horrible disease, and thank you for sharing your story.<br /><br />You - and your daughter - and your family - are in my prayers.<br /><br />~Peace,<br /><br />LuAnneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-19200194797153120892012-07-11T19:25:31.973-04:002012-07-11T19:25:31.973-04:00I can understand your fears. I watched my daughter...I can understand your fears. I watched my daughter get a spinal tap when she was 2 weeks old and it was horrible. I was brave while the docotr's were there, but as soon as they left I cried. As a parent, we never want to see our children suffer.<br />I am glad she is doing better. We will continue to pray for her.Monique G.https://www.blogger.com/profile/04098070604153085200noreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-24699905838402829412012-07-11T18:32:23.908-04:002012-07-11T18:32:23.908-04:00Holy cow! I can't even imagine what you have ...Holy cow! I can't even imagine what you have been through {thinking of my little 8 yr. old}. Thank you SO MUCH for sharing this information! Know you are lifted in prayer.<br /><br />Our Lady of Mt. Carmel, pray for us.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8467184516054189174.post-83721435130025324682012-07-11T16:56:04.903-04:002012-07-11T16:56:04.903-04:00Oh, Allison.
Thank you for writing this excellen...Oh, Allison. <br /><br />Thank you for writing this excellent post. It's a great warning of the difficulties of Lyme disease, and it's a wonderful example of Faith in time of trouble. I, too, am elated that you and your family can now look forward to some rest. My sister had had a giant bout with this herself when her children were little. It was exhausting on her and the family.<br /><br />I'm praying that you have no setbacks and that your friend's son does well.Mary @ St. Anne's Helperhttp://www.roman-catholic-catechism.com/index.htmlnoreply@blogger.com